Organizations

Discover youth-led organizations combating NTDs across the globe

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9 organizations found

Bilharzia Storytelling Initiatives

📍 Rwanda, Africa

Bilharzia Storytelling Initiative is a community-focused organization dedicated to raising awareness and preventing Bilharzia, also known as schistosomiasis, a neglected tropical disease caused by parasitic worms of the genus Schistosoma. The disease spreads through contact with contaminated freshwater and mainly affects children and vulnerable communities. Our initiative uses storytelling, drawings, games, and interactive activities to make health education engaging and easy to understand for young learners. We work primarily in primary schools across Bugesera, Ruhango, and Gatsibo districts in Rwanda, where we share specially designed Notebooks with strong covers and clear illustrations that teach children safe hygiene practices and disease prevention. In addition, we organize training sessions for teachers, parents, and community health workers to strengthen community awareness and encourage healthy behaviors at home and in villages. Through creativity, education, and community involvement, Bilharzia Storytelling Initiative aims to reduce the spread of schistosomiasis and build healthier, more informed communities.

Schistosomiasis

Education & AwarenessAdvocacy+1

CAN 1.5°C [Climate Action & NTDs]

📍 Pakistan, Asia

CAN 1.5°C is a youth-led initiative working at the intersection of climate change, Neglected Tropical Diseases (NTDs), and community health. Founded by young advocates from the Pakistan, the initiative emerged from on-the-ground experiences witnessing how climate-driven shocks — such as floods, rising temperatures, and poor sanitation — are intensifying NTD transmission and deepening health inequities. Our work centers on translating local realities into informed advocacy by combining community engagement, education, creative communication, and youth leadership. CAN 1.5°C works closely with schools, universities, affected communities, and grassroots actors to raise awareness, document lived experiences, and co-create locally grounded solutions. We use creative advocacy tools such as storytelling, short documentaries, art-based activities, and youth-friendly educational materials to make complex climate–health links accessible and actionable. At the global level, CAN 1.5°C amplifies community voices through participation in international forums, cross-country collaborations, and policy-relevant dialogue. Our approach ensures that youth are not only participants, but leaders shaping conversations on climate resilience, health equity, and NTD elimination.

Chagas diseaseDengue and chikungunyaSchistosomiasis+3

Education & AwarenessAdvocacy+3

German Working Group for Neglected Tropical Diseases (AG NTD)

📍 Germany, Europe

The Working Group for Neglected Tropical Diseases (AG NTD) was founded in January 2024 as a German NTD Youth Initiative. It started within the “Young DTG” of the German Society for Tropical Medicine, Travel Medicine and Global Health (Deutsche Gesellschaft für Tropenmedizin, Reisemedizin und Globale Gesundheit e.V., DTG). We are committed to raising awareness for NTDs, especially among young people, and to inspiring their active involvement in research, advocacy, policy and clinical practice. Through collaboration with partners and youth initiatives worldwide, we seek to build strong international networks and foster interdisciplinary cooperation in order to drive progress towards the control and elimination of NTDs.

Buruli ulcerChagas diseaseDengue and chikungunya+18

Education & AwarenessCommunications & Media+4

Global Alliance for NTDs Elimination-Kenya(GANE-Ke)

📍 Kenya, Africa

The Global Alliance for NTDs Elimination (GANE) is a registered youth-led NGO founded in September 2024 committed to eliminating neglected tropical diseases (NTDs) through strong social media advocacy, the integration of Water, Sanitation, and Hygiene (WASH) and the One Health approach, policy advocacy, and community engagement supported by innovative technologies. Our work is centered on meaningful community engagement, strategic advocacy, and policy reform to achieve sustainable and impactful health outcomes. By working closely with both communities and policymakers, we seek to bridge the gaps between the health, environmental, and infrastructure sectors, creating a holistic and coordinated approach to tackling NTDs and promoting long-term health improvements.

LeishmaniasisLymphatic FilariasisRabies+5

AdvocacyCommunity Health+6

Malaria and NTDs Youth Champions South Sudan

📍 South Sudan, Africa

The Malaria and NTDs Youth Champions South Sudan (MYCSS) is a youth-led network committed to combating malaria and neglected tropical diseases (NTDs) through education, advocacy, and community-driven interventions. As part of the African Leaders Malaria Alliance (ALMA) Malaria Youth Champions initiative, MYCSS aligns its strategies with national, regional, and global frameworks to accelerate progress toward malaria and NTDs elimination in South Sudan by 2030. The initiative was launched in partnership with the National Malaria Control Programme (NMCP) and National NTDs Programme under the Ministry of Health and emphasizes community-led approaches and meaningful youth engagement as pivotal elements in malaria eradication. At the national level, MYCSS aligns with South Sudan’s National Malaria Strategic Plan (2020–2025) and the Health Sector Strategic Plan (2023–2027), integrating malaria and NTD programming into youth-driven interventions.

Human African trypanosomiasisLeishmaniasisLeprosy+12

Education & AwarenessResearch+6

Neglected Tropical Diseases Advocacy Club

📍 Ghana, Africa

IN EXERCISE of our natural and inalienable right of association, WITH THE VISION of creating awareness of Neglected Tropical Diseases (NTDs) and providing education on the preventive and control measures. WITH A MISSION to come together to combat NTDs through advocacy and contribute to the knowledge and understanding of all people

Education & AwarenessAdvocacy

Network of Persons Affected with NTDs in Liberia (NEPA-NTDs Liberia)

📍 Liberia, Africa

NEPA-NTDs Liberia is an institution that organizes, empowers, and advocates for persons affected by NTDs in Liberia through community action, policy engagement, and inclusive development.

Buruli ulcerLeprosyLymphatic Filariasis+3

Education & AwarenessResearch+6

NTDs Youth Japan

📍 Japan, Asia

NTDs Youth is a youth-led organization based in Japan dedicated to eliminating neglected tropical diseases (NTDs). Our mission is to raise awareness about the significance of NTDs—diseases that affect approximately 1.5 billion people worldwide—through advocacy and policy recommendations. We collaborate with a diverse range of domestic and international partners to organize initiatives that encourage students and young people to engage with NTD-related challenges that impact their lives. Notably, around January 30, World NTD Day, we host events such as the Neglected Tropical Diseases Contest, which provides opportunities for students to learn, reflect, and take action. Additionally, we engage in dialogue with policymakers, including members of parliament and officials from central government agencies, through policy briefings, study sessions, and consultations. Through these efforts, we aim to advance and strengthen Japan’s commitment to addressing neglected tropical diseases.

LeishmaniasisLymphatic FilariasisOnchocerciasis+3

ResearchEducation & Awareness+3

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One Health Society

📍 Tanzania, Africa

One Health Society (OHS) is a registered non-governmental organization based in Tanzania, committed to strengthen health systems by addressing complex and interconnected health challenges through a One Health approach. Working at the interface of human, animal, and environmental health, OHS focuses on neglected tropical diseases (NTDs), antimicrobial resistance (AMR), climate-related health threats, and pandemic preparedness and response.

TrachomaSchistosomiasisSoil-transmitted helminthiases+2

Education & AwarenessResearch+5